+ Site Statistics
+ Search Articles
+ PDF Full Text Service
How our service works
Request PDF Full Text
+ Follow Us
Follow on Facebook
Follow on Twitter
Follow on LinkedIn
+ Subscribe to Site Feeds
Most Shared
PDF Full Text
+ Translate
+ Recently Requested

Prenatal diagnosis and termination of pregnancy: perspectives of South African parents of children with Down syndrome



Prenatal diagnosis and termination of pregnancy: perspectives of South African parents of children with Down syndrome



Journal of Community Genetics 4(1): 87-97



This study aims to evaluate the attitudes of a group of South African parents with a preschool child with Down syndrome (DS) towards prenatal diagnosis (PND) and termination of a Down syndrome-affected pregnancy (TAP). This study employs a qualitative phenomenological approach with the use of semi-structured interviews. Twelve participants were recruited from two state sector hospitals in Cape Town, South Africa. Thematic analysis was used to interpret the data. The participants had a positive attitude towards PND and felt that it was every parent's right to have the option. They considered a benefit of PND the fact that it allowed parents time to prepare for the arrival of a baby with DS. The induced miscarriage risk associated with invasive prenatal testing procedures caused major negative feelings. They were totally opposed to the termination of a Down syndrome-affected pregnancy due to their personal experience, moral, ethical or religious convictions. South African parents of preschool children with Down syndrome are comfortable with PND for Down syndrome; however, they do not support TAP. These findings will provide health care providers with further insight into the motivations behind the decisions their patients make.

Please choose payment method:






(PDF emailed within 0-6 h: $19.90)

Accession: 036632737

Download citation: RISBibTeXText

PMID: 23096497

DOI: 10.1007/s12687-012-0122-0


Related references

Attitudes toward prenatal diagnosis, termination of pregnancy, and reproduction by parents of children with nonsyndromic oral clefts in Argentina. Prenatal Diagnosis 23(9): 722-727, 2003

Attitudes of Saudi parents with a deaf child towards prenatal diagnosis and termination of pregnancy. Prenatal Diagnosis 34(2): 153-158, 2016

Attitudes toward prenatal testing and pregnancy termination among a diverse population of parents of children with intellectual disabilities. Prenatal Diagnosis 31(13): 1251-1258, 2012

Attitudes toward prenatal genetic testing and therapeutic termination of pregnancy among parents of offspring with Prader-Willi syndrome. European Journal of Medical Genetics 60(4): 205-211, 2017

Attitudes towards prenatal testing and termination of pregnancy in British Pakistani parents and relatives of children with recessive conditions in the UK. Prenatal Diagnosis 32(10): 954-959, 2013

Our children are not a diagnosis: the experience of parents who continue their pregnancy after a prenatal diagnosis of trisomy 13 or 18. American Journal of Medical Genetics. Part a 164a(2): 308-318, 2014

The impact of legal termination of pregnancy and of prenatal diagnosis on the birth prevalence of Down syndrome in Denmark. Annals of Human Genetics 47(Pt 2): 123-131, 1983

Early prenatal diagnosis of Hurler's syndrome with termination of pregnancy and confirmatory findings on the fetus. Journal of Medical Genetics 10(2): 144-153, 1973

Midtrimester prenatal diagnosis of neural tube defects following amniocentesis and selective termination of pregnancy in south wales 1973 1983. Voth, D And P Glees (Ed ) Spina Bifida: Neural Tube Defects: Basic Research, Interdisciplinary Diagnostics And Treatment, Results And Prognosis; 5th Workshop, Mainz, West Germany, September 1984 Xi+320p Walter De Gruyter And Co : Berlin, West Germany; New York, New York, Usa Illus 165-178, 1986

Termination of pregnancy following a prenatal diagnosis of Down syndrome: A qualitative study of the decision-making process of pregnant couples. Acta Obstetricia et Gynecologica Scandinavica 97(10): 1228-1236, 2018

The impact of prenatal diagnosis on the birth prevalence of malformed children in a region without upper limit for termination of pregnancy. American Journal of Human Genetics 73(5): 591, 2003

Prenatal diagnosis of hypoplastic left heart syndrome: impact of counseling patterns on parental perceptions and decisions regarding termination of pregnancy. Pediatric Cardiology 33(8): 1402-1410, 2013

Nephrotic Syndrome in South African Children: Changing Perspectives in the New Millennium. Kidney International Reports 4(4): 522-534, 2019

Nephrotic syndrome in South African children: Changing perspectives over 20 years. Pediatric Nephrology 11(4): 429-434, 1997

Nephrotic syndrome in South African children revisited Changing perspectives over 20 years. Pediatric Nephrology 11(5): C81, 1997