+ Site Statistics
+ Search Articles
+ PDF Full Text Service
How our service works
Request PDF Full Text
+ Follow Us
Follow on Facebook
Follow on Twitter
Follow on LinkedIn
+ Subscribe to Site Feeds
Most Shared
PDF Full Text
+ Translate
+ Recently Requested

Measuring patients' desire for autonomy: decision making and information-seeking preferences among medical patients



Measuring patients' desire for autonomy: decision making and information-seeking preferences among medical patients



Journal of General Internal Medicine 4(1): 23-30



An instrument for measuring patients' preferences for two identified dimensions of autonomy, their desire to make medical decisions and their desire to be informed, was developed and tested for reliability and validity. The authors found that patients prefer that decisions be made principally by their physicians, not themselves, although they very much want to be informed. There was no correlation between patients' decision making and information-seeking preferences (r = 0.09; p = 0.15). For the majority of patients, their desire to make decisions declined as they faced more severe illness. Older patients had less desire than younger patients to make decisions and to be informed (p less than 0.0001 for each comparison). However, only 19% of the variance among patients for decision making and 12% for information seeking could be accounted for by stepwise regression models using sociodemographic and health status variables as predictors. The conceptual and clinical implications of these findings are discussed.

Please choose payment method:






(PDF emailed within 1 workday: $29.90)

Accession: 040655183

Download citation: RISBibTeXText

PMID: 2644407


Related references

Unobserved heterogeneity in trauma patients' desire for autonomy in medical decision making in an emergency department. Medical Science Monitor 14(7): Cr366-Cr371, 2008

Decision making and information seeking preferences among psychiatric patients. Journal of Mental Health 15(1): 75-84, 2006

Trauma patients desire for autonomy in medical decision making is impaired by smoking and hazardous alcohol consumption - a bi-national study. Journal of International Medical Research 35(5): 609-614, 2007

Information-seeking and decision-making preferences among adult orthodontic patients: an elective health care model. Community Dentistry and Oral Epidemiology 39(1): 79-86, 2011

Are patients' preferences for information and participation in medical decision-making being met? Interview study with lung cancer patients. Palliative Medicine 25(1): 62-70, 2011

Development of a new instrument for the evaluation of the desire for information and decision making in patients with asthma. Archivos de Bronconeumologia 36(10): 563-568, 2000

Information seeking and decision making in asthmatic patients. Archivos de Bronconeumologia 35(9): 435-439, 1999

Patients' preferences for decision making and the feeling of being understood in the medical encounter among patients with rheumatoid arthritis. Arthritis and Rheumatism 55(6): 878-883, 2006

Perceived need for information among patients with a haematological malignancy: associations with information satisfaction and treatment decision-making preferences. Hematological Oncology 33(2): 85-98, 2015

Treatment decision-making and information-seeking preferences in women with pelvic floor disorders. International Urogynecology Journal 21(9): 1071-1078, 2010

Patient desire for information and decision making in health care decisions: the Autonomy Preference Index and the Health Opinion Survey. Journal of General Internal Medicine 10(11): 593-600, 1995

Patients' preferences for information in health care decision-making. Medicina 72(5): 393-398, 2012

Preferences about information and decision-making among older patients with and without cancer. Age and Ageing 46(4): 665-671, 2017

Decision-making preferences and information needs among Greek breast cancer patients. Psycho-Oncology 20(8): 871-879, 2011

Patients' preferences on information and involvement in decision making for gastrointestinal surgery. World Journal of Surgery 37(9): 2162-2171, 2013