+ Site Statistics
References:
54,258,434
Abstracts:
29,560,870
PMIDs:
28,072,757
+ Search Articles
+ PDF Full Text Service
How our service works
Request PDF Full Text
+ Follow Us
Follow on Facebook
Follow on Twitter
Follow on LinkedIn
+ Subscribe to Site Feeds
Most Shared
PDF Full Text
+ Translate
+ Recently Requested

Agreement between pediatric brain tumor patients and parent proxy reports regarding the Pediatric Functional Assessment of Cancer Therapy-Childhood Brain Tumor Survivors questionnaire, version 2



Agreement between pediatric brain tumor patients and parent proxy reports regarding the Pediatric Functional Assessment of Cancer Therapy-Childhood Brain Tumor Survivors questionnaire, version 2



Cancer 116(15): 3674-3682



This study investigated the agreement between self-reports from pediatric brain tumor patients and proxy reports from their parents regarding the patients' quality of life (QOL), as assessed using a brain tumor-specific QOL assessment tool, the Pediatric Functional Assessment of Cancer Therapy-Childhood Brain Tumor Survivors (pedsFACT-BrS) questionnaire. The authors expected moderate correlation and similar mean scores between patient and parent reports. The pedsFACT-BrS for those aged 7 to 18 years was completed by 351 brain tumor patients (166 children and 185 adolescents), and the parent proxy reports were completed by 351 mother proxies and 37 father proxies. Statistical analyses, including the Pearson product-moment correlation coefficient, intraclass correlation, and comparison of group means, were used to compare the 33 items shared by all 4 versions of the pedsFACT-BrS. The correlation between reports completed by pediatric patients and their parent proxies was significant (P=.59-.84), whereas that between the reports of adolescent patients and their parent proxies was slightly weaker (P=.47-.78). The patient and parent proxy reports showed moderate-to-good agreement and yielded similar mean scores in both the child and adolescent brain tumor patient groups; the sole exception was a difference in emotional well-being scores. The results indicate that proper use of the pedsFACT-BrS for patients and their parent proxies can provide clinicians with valid information about the overall QOL of child and adolescent brain tumor patients, including both their general health and their brain tumor-specific well-being.

Please choose payment method:






(PDF emailed within 0-6 h: $19.90)

Accession: 051420055

Download citation: RISBibTeXText

PMID: 20564119

DOI: 10.1002/cncr.25200


Related references

Validation of the Pediatric Functional Assessment of Cancer Therapy Questionnaire (Version 2.0) in brain tumor survivors aged 13 years and older. Journal of Pain and Symptom Management 40(4): 559-565, 2011

Validation of Pediatric Functional Assessment of Cancer Therapy Questionnaire (Version 2.0) in Brain Tumor Survivor Aged 13 Years and Older (Parent Form)(PedsFACT-BrS Parent of Adolescent). Journal of Korean Neurosurgical Society 49(3): 147-152, 2011

Validation of pediatric Functional Assessment of Cancer Therapy: patient version 2 of "brain tumor survivor" for grade school patients aged 7-12 years. Quality of Life Research 20(4): 529-535, 2011

Cn-05 * Do Pediatric Brain Tumor Survivors Suffer An Increased Risk Of Ovarian/Endocrine Dysfunction As Compared To Non-Brain Tumor Survivors?. Neuro-Oncology 16(Suppl 5): v47, 2014

Measurement equivalence across child self-reports and parent-proxy reports in the Chinese version of the pediatric quality of life inventory version 4.0. Child Psychiatry and Human Development 44(5): 583-590, 2014

Quality of Life in Survivors of Pediatric Cancer and Their Siblings: The Consensus Between Parent-Proxy and Self-Reports. Pediatric Blood and Cancer 63(4): 677-683, 2016

Parent reports of children's working memory, coping, and emotional/behavioral adjustment in pediatric brain tumor patients: A pilot study. Child Neuropsychology 24(7): 959-974, 2017

Health-related quality of life in parents of pediatric brain tumor survivors at the end of tumor-directed therapy. Journal of Psychosocial Oncology 34(4): 274-290, 2017

Quality-of-life assessment in pediatric brain tumor patients and survivors: lessons learned and challenges to face. Journal of Clinical Oncology 23(24): 5424-5426, 2005

Impact of brain tumor and its treatment on the physical and psychological well-being, and quality of life amongst pediatric brain tumor survivors. European Journal of Oncology Nursing 41: 104-109, 2019

Differences in parent and teacher rating of everyday executive function in pediatric brain tumor survivors. Clinical Neuropsychologist 28(8): 1243-1257, 2015

The utility of parent report in the assessment of working memory among childhood brain tumor survivors. Journal of the International Neuropsychological Society 19(4): 380-389, 2013

DTI assessment of the brainstem white matter tracts in pediatric BSG before and after therapy: a report from the Pediatric Brain Tumor Consortium. Child's Nervous System 27(1): 11-18, 2011

Screening for psychological well-being in childhood cancer survivors: a preliminary assessment of the feasibility of the strength and difficulties questionnaire as a parent-proxy report. Journal of Psychosocial Oncology 31(6): 601-616, 2014

Late effects of therapy for pediatric brain tumor survivors. Journal of Child Neurology 24(11): 1455-1463, 2010