+ Site Statistics
+ Search Articles
+ PDF Full Text Service
How our service works
Request PDF Full Text
+ Follow Us
Follow on Facebook
Follow on Twitter
Follow on LinkedIn
+ Subscribe to Site Feeds
Most Shared
PDF Full Text
+ Translate
+ Recently Requested

An exploration of the experience, confidence and attitudes of staff to the provision of palliative care to people with intellectual disabilities



An exploration of the experience, confidence and attitudes of staff to the provision of palliative care to people with intellectual disabilities



Palliative Medicine 24(6): 566-572



Research suggests that shortcomings exist in the provision of palliative care to people with intellectual disabilities. This mixed-methods study aimed to describe the experience, confidence and attitudes of staff to the provision of palliative care to people with intellectual disabilities. The sample was drawn from the population of one Health Service Executive area in Ireland. Staff from intellectual disability and palliative care services completed surveys and participated in focus group discussions. Three hundred and eighty-nine questionnaires were distributed and 16 focus groups were held. Fifty-nine per cent of palliative care staff and 67% of intellectual disability services staff had cared for someone with intellectual disability who had died but level of experience was low. Both palliative care and intellectual disability services staff lacked confidence in their ability to provide palliative care. Staff were challenged by perceived 'differences' and 'difficulties' in the provision of care. They endorsed a partnership approach to care but focus group discussions revealed that a shared desire to cooperate was insufficient to guarantee effective collaboration.

Please choose payment method:






(PDF emailed within 0-6 h: $19.90)

Accession: 051489213

Download citation: RISBibTeXText

PMID: 20558434

DOI: 10.1177/0269216310371413


Related references

Palliative care provision for people with intellectual disabilities: a questionnaire survey of specialist palliative care professionals. Palliative Medicine 22(3): 281-290, 2008

Palliative care provision for people with intellectual disabilities: interviews with specialist palliative care professionals in London. Palliative Medicine 21(6): 493-499, 2007

Providing palliative care to people with intellectual disabilities: services, staff knowledge, and challenges. Journal of Palliative Medicine 11(9): 1241-1248, 2008

their opinions mean something: Care staff's attitudes to health research involving people with intellectual disabilities. British Journal of Learning Disabilities 45(3): 198-207, 2017

Staff attitudes and the provision of individualised care: What determines what we do for people with long-term psychiatric disabilities?. Journal of Mental Health 1(1): 71-80, 1992

Staff attitudes to sexuality and people with intellectual disabilities. Irish Journal of Psychology 21(1-2): 88-97, 2000

Attitudes of American and Israeli staff toward people with intellectual disabilities. Mental Retardation 42(1): 26-36, 2004

Self-Harm Among People with Intellectual Disabilities Living in Secure Service Provision: A Qualitative Exploration. Journal of Applied Research in Intellectual Disabilities 22(6): 503-513, 2009

Staff attitudes towards people with intellectual disabilities in Japan and the United States. Journal of Intellectual Disability Research 59(10): 942-947, 2015

Defining consensus norms for palliative care of people with intellectual disabilities in Europe, using Delphi methods: A White Paper from the European Association of Palliative Care. Palliative Medicine 30(5): 446-455, 2016

Perspectives on the role of the community pharmacist in the provision of healthcare to people with intellectual disabilities: exploration of the barriers and solutions. International Journal of Pharmacy Practice 14(4): 263-269, 2006

Palliative care for people with intellectual disabilities. International Journal of Palliative Nursing 18(6): 264 266, 2012

Embracing the setting sun: provision of palliative care via a collaborative model between hospital and community for patients with intellectual disabilities. Annals of Palliative Medicine 7(3): 365-367, 2018

Excellence in palliative and end-of-life care provision for people with intellectual disability. International Journal of Palliative Nursing 24(12): 598-610, 2018

Nursing care provision for people with intellectual disabilities in institutions: A Taiwanese perspective. Journal of Intellectual & Developmental Disability 30(4): 193-198, 2005