+ Site Statistics
+ Search Articles
+ PDF Full Text Service
How our service works
Request PDF Full Text
+ Follow Us
Follow on Facebook
Follow on Twitter
Follow on LinkedIn
+ Subscribe to Site Feeds
Most Shared
PDF Full Text
+ Translate
+ Recently Requested

Autism spectrum disorders, risk communication, and the problem of inadvertent harm

Autism spectrum disorders, risk communication, and the problem of inadvertent harm

Kennedy Institute of Ethics Journal 23(2): 105-138

Autism spectrum disorders (ASDs) are an issue of significant and growing importance to the field of public health. The prevalence of ASDs is rising, and these disorders significantly impact the quality of life of affected persons and their families. Though the etiology of ASDs has long been poorly understood, in recent years, studies are revealing genetic and environmental risk information about ASDs, with much more risk information expected to follow from scientific studies currently underway. The availability of this risk information raises questions about whether and how it should be communicated to individuals, families, and the public at large. One ethical issue of particular concern with ASD risk communication is the possibility that it may cause inadvertent harm to risk message recipients. Here we review the emerging picture of ASD risk, discuss some ways in which it may lead to inadvertent harm, and suggest some future directions for risk communication research and practice that might help to address this issue.

Please choose payment method:

(PDF emailed within 1 workday: $29.90)

Accession: 051720604

Download citation: RISBibTeXText

PMID: 23888834

Related references

WISC-IV profile in high-functioning autism spectrum disorders: impaired processing speed is associated with increased autism communication symptoms and decreased adaptive communication abilities. Journal of Autism and Developmental Disorders 42(5): 655-664, 2012

Spontaneous initiation of communication in infants at low and heightened risk for autism spectrum disorders. Developmental Psychology 49(10): 1931-1942, 2013

Brief report: do the nature of communication impairments in autism spectrum disorders relate to the broader autism phenotype in parents?. Journal of Autism and Developmental Disorders 43(12): 2984-2989, 2013

Language and communication skills in preschool children with autism spectrum disorders: contribution of cognition, severity of autism symptoms, and adaptive functioning to the variability. Research in Developmental Disabilities 33(1): 172-180, 2012

Effectiveness of the Picture Exchange Communication System (PECS) on communication and speech for children with autism spectrum disorders: a meta-analysis. American Journal of Speech-Language Pathology 19(2): 178-195, 2010

Analysis of Hair Trace Elements in Children with Autism Spectrum Disorders and Communication Disorders. Biological Trace Element Research 177(2): 215-223, 2017

Do communication disorders extend to musical messages? An answer from children with hearing loss or autism spectrum disorders. Journal of Music Therapy 52(1): 78, 2015

Prenatal valproate exposure and risk of autism spectrum disorders and childhood autism. Archives of Disease in Childhood. Education and Practice Edition 99(5): 198, 2014

Verbal problem-solving in autism spectrum disorders: a problem of plan construction?. Autism Research 4(6): 401-411, 2011

The familial independence of IQ and communication in autism spectrum disorders. American Journal of Medical Genetics 122B(1): 97-98, 2003

Social (pragmatic) communication disorders and autism spectrum disorder. Archives of Disease in Childhood 101(8): 745-751, 2016

Screening for autism spectrum disorders with the social communication questionnaire. Journal of Developmental and Behavioral Pediatrics 27(2 Suppl.): S95-S103, 2006

Population attributable fractions for three perinatal risk factors for autism spectrum disorders, 2002 and 2008 autism and developmental disabilities monitoring network. Annals of Epidemiology 24(4): 260-266, 2014

Randomized comparison of two communication interventions for preschoolers with autism spectrum disorders. Journal of Consulting and Clinical Psychology 74(3): 426-435, 2006

The development of co-speech gesture in the communication of children with autism spectrum disorders. Clinical Linguistics and Phonetics 27(12): 922-939, 2013