+ Site Statistics
+ Search Articles
+ PDF Full Text Service
How our service works
Request PDF Full Text
+ Follow Us
Follow on Facebook
Follow on Twitter
Follow on LinkedIn
+ Subscribe to Site Feeds
Most Shared
PDF Full Text
+ Translate
+ Recently Requested

Family perceptions of quality of hospice care in the nursing home



Family perceptions of quality of hospice care in the nursing home



Journal of Pain and Symptom Management 48(6): 1100-1107



Nursing homes (NHs) are increasingly the site of hospice care. High quality of care is dependent on successful NH-hospice collaboration. To examine bereaved family members' perceptions of NH-hospice collaborations in terms of what they believe went well or could have been improved. Focus groups were conducted with bereaved family members from five diverse geographic regions, and included participants from inner city and rural settings, with oversampling of African Americans. A total of 28 participants (14.8% African American, mean age 61.4 years) identified three major aspects of collaboration as important to care delivery. First, most (67.9%) voiced concerns with knowing who (NH or hospice) is responsible for which aspects of patient care. Second, nearly half (42.9%) stated concern about information coordination between the NH and hospice. Finally, 67.9% of the participants mentioned the need for hospice to advocate for high-quality care rather than their having to directly do so on behalf of their family members. The important concerns raised by bereaved family members about NH-hospice collaboration have been incorporated into the revised Family Evaluation of Hospice Care, a post-death survey used to evaluate quality of hospice care.

Please choose payment method:






(PDF emailed within 0-6 h: $19.90)

Accession: 053206930

Download citation: RISBibTeXText

PMID: 24819082

DOI: 10.1016/j.jpainsymman.2014.04.003


Related references

Patients' perceptions of palliative care quality in hospice inpatient care, hospice day care, palliative units in nursing homes, and home care: a cross-sectional study. Bmc Palliative Care 15(1): 79, 2016

Hospice family members' perceptions of and experiences with end-of-life care in the nursing home. Journal of the American Medical Directors Association 15(10): 744-750, 2014

Care recipients' and family members' perceptions of quality of older people care: a comparison of home-based care and nursing homes. Journal of Clinical Nursing 20(9-10): 1423-1435, 2011

Geographic distance, contact and family perceptions of quality nursing home care. Journal of Clinical Nursing 22(11-12): 1779-1782, 2013

Quality of life at the end of life for nursing home residents: perceptions of hospice and nursing home staff members. Journal of Pain and Symptom Management 35(1): 1-9, 2007

A descriptive study of California hospice providers' perceptions of public reporting of quality data using the Family Evaluation of Hospice Care Survey. American Journal of Hospice and Palliative Care 31(4): 428-434, 2014

Perceptions of pediatric home care and hospice: how family-centered care can help. Caring 30(5): 16-21, 2011

The relationship between nursing home residents' perceptions of nursing staff and quality of nursing home care. Activities Adaptation and Aging 8(3-4): 143-156, 1986

Correlates of Family Satisfaction with Hospice Care: General Inpatient Hospice Care versus Routine Home Hospice Care. Journal of Palliative Medicine 19(1): 97, 2016

Primary caregivers; perceptions of nursing behaviors that best meet their needs in a home care hospice setting. Cancer Nursing 5(5): 371-374, 1982

Perceptions of the most helpful nursing behaviors in a home-care hospice setting: caregivers and nurses. American Journal of Hospice and Palliative Care 9(5): 22-31, 1992

Length of home hospice care, family-perceived timing of referrals, perceived quality of care, and quality of death and dying in terminally ill cancer patients who died at home. Supportive Care in Cancer 23(2): 491-499, 2015

Characteristics of patients receiving hospice care at home versus in nursing homes: results from the National Home and Hospice Care Survey and the National Nursing Home Survey. American Journal of Hospice and Palliative Care 24(6): 479-486, 2008

Problems of home hospice care related to duration--home hospice care for cancer patients who died at home within a week after the start of home hospice care. Gan to Kagaku Ryoho. Cancer and ChemoTherapy 35(Suppl. 1): 16-18, 2008

Perceptions of terminally ill patients and family members regarding home and hospice as places of care at the end of life. European Journal of Cancer Care 20(5): 577-584, 2011