+ Site Statistics
+ Search Articles
+ Subscribe to Site Feeds
Most Shared
PDF Full Text
+ PDF Full Text
Request PDF Full Text
+ Follow Us
Follow on Facebook
Follow on Twitter
Follow on LinkedIn
+ Translate
+ Recently Requested

Information processing in the context of genetic risk: implications for genetic-risk communication

Information processing in the context of genetic risk: implications for genetic-risk communication

Journal of Genetic Counseling 16(4): 419-432

Communicating genetic-risk information is fraught with difficulties, and there are no universally accepted guidelines for clinical practice. In this paper, we suggest that information-processing models may offer some guidance for the communication of genetic risk. The paper reviews selected literature from health and social psychology, including defensive reactions to threatening health information, the Extended Parallel Process Model (EPPM) and Self Affirmation Theory. Ultimately, it presents the Heuristic-Systematic Model (HSM) of information processing as a useful perspective from which to view genetic-risk communication. Through our review of this literature, we identify some of the variables found to influence the systematic or heuristic processing of risk information and note their relevance to genetic counseling contexts. We suggest that systematic information processing is conducive to informed decision-making, as well as improved understanding of risk information. Clinical practice implications derived from our review of these literatures are noted.

(PDF emailed within 0-6 h: $19.90)

Accession: 053857411

Download citation: RISBibTeXText

PMID: 17473961

DOI: 10.1007/s10897-006-9082-z

Related references

Information requirements and regulatory approaches for heritable genetic risk assessment and risk communication. Mutation Research 330(1-2): 35-40, 1995

Genetic information and the importance of context: implications for the social meaning of genetic information and individual identity. Saint Louis University Law Journal 47(2): 423-462, 2004

Impact of genetic risk information and type of disease on perceived risk, anticipated affect, and expected consequences of genetic tests. Health Psychology 28(3): 307-316, 2009

Family communication about genetic risk information: particular issues for Duchenne muscular dystrophy. American Journal of Medical Genetics. Part A 152a(5): 1225-1232, 2010

The language of uncertainty in genetic risk communication: framing and verbal versus numerical information. Patient Education and Counseling 43(2): 179-187, 2001

Cancer genetic counselor information needs for risk communication: a qualitative evaluation of interview transcripts. Journal of Personalized Medicine 3(3): -, 2013

Potential threats to the effective communication of genetic risk information: the case of cystic fibrosis. Health Communication 23(3): 234-244, 2008

Communication of genetic risk information to daughters in families with fragile X syndrome: the parent's perspective. Journal of Genetic Counseling 20(1): 58-69, 2011

Consumer interpretation of ramipril and clopidogrel medication risk information - implications for risk communication strategies. Patient Preference and Adherence 9(): 983-988, 2015

Regulating the communication of genetic risk information: the Italian legal approach to questions of confidentiality and disclosure. Clinical Genetics 82(3): 205-209, 2013

Does enhanced information at cancer genetic counseling improve counselees' knowledge, risk perception, satisfaction and negotiation of information to at-risk relatives?--a randomized study. Acta Oncologica 48(7): 999-1009, 2010

Do genetic risk scores for body mass index predict risk of phobic anxiety? Evidence for a shared genetic risk factor. Psychological Medicine 45(1): 181-191, 2015

Familial genetic risk assessment for ovarian cancer Psychosocial status and risk communication. Gynecologic Oncology 68(1): 120-121, 1998

Genetic variation in susceptibility as a key parameter in risk assessment and risk communication: policy aspects. Progress in Clinical and Biological Research 395: 235-247, 1996

Selection of family members for communication of cancer risk and barriers to this communication before and after genetic cancer risk assessment. Genetics in Medicine 9(5): 275-282, 2007