+ Site Statistics
+ Search Articles
+ PDF Full Text Service
How our service works
Request PDF Full Text
+ Follow Us
Follow on Facebook
Follow on Twitter
Follow on LinkedIn
+ Subscribe to Site Feeds
Most Shared
PDF Full Text
+ Translate
+ Recently Requested

Quality of life and quality of care for people with dementia receiving long term institutional care or professional home care: the European RightTimePlaceCare study



Quality of life and quality of care for people with dementia receiving long term institutional care or professional home care: the European RightTimePlaceCare study



Journal of the American Medical Directors Association 15(1): 54-61



To explore how quality of life (QoL) and quality of care (QoC) for people with dementia (PwD) vary across 8 European countries; to explore how QoL and QoC for PwD vary across living arrangements; and to assess the association between QoL and QoC. Cross-sectional survey. Institutional long term care and home care in 8 European countries (England, Estonia, Finland, France, Germany, the Netherlands, Spain, and Sweden). PwD receiving formal home care but at risk for admission to an institutional setting, and PwD who were recently admitted. QoL was assessed by the PwD and by their best informed proxies using the Quality of Life-Alzheimer's Disease scale (QoL-AD) (range 13-52). QoC was measured using quality of care indicators (eg, the presence of depressive symptoms, the presence of pressure ulcers). A total of 1123 PwD living at home (mean age 82.2, 63%women) and 791 PwD living in institutional care (mean age 84.1, 74% women) participated. QoL of PwD was most often rated highest in Sweden and England and lowest in Estonia and Spain. No differences in QoL were detected among the settings. For the QoC indicators, no consistent patterns were visible in such a way that certain countries or settings scored "higher" or "lower." The presence of depressive symptoms was most consistently associated with lower QoL (P ≤ .001). There is great variation in QoL and QoC scores among European countries and settings. To gain insight into the underlying causes of these differences, more knowledge is needed about the effect of different national health care systems and dementia strategies on QoL and QoC indicators. Depressive symptoms were associated with QoL, and executing longitudinal studies investigating which factors are associated with change in QoL is highly recommended.

Please choose payment method:






(PDF emailed within 0-6 h: $19.90)

Accession: 055309139

Download citation: RISBibTeXText

PMID: 24220139

DOI: 10.1016/j.jamda.2013.09.010


Related references

Care planning for people with dementia on the margins of care between home care and nursing home: the balance of care approach in the RightTimePlaceCare project in Germany. Zeitschrift für Gerontologie und Geriatrie 52(8): 751-757, 2019

Nursing home care for people with dementia and residents' quality of life, quality of care and staff well-being: design of the Living Arrangements for people with Dementia (LAD)-study. Bmc Geriatrics 11: 11, 2012

A European study investigating patterns of transition from home care towards institutional dementia care: the protocol of a RightTimePlaceCare study. Bmc Public Health 12: 68, 2012

Care staff and family member perspectives on quality of life in people with very severe dementia in long-term care: a cross-sectional study. Health and Quality of Life Outcomes 12: 175, 2014

Dementia care costs and the patient's quality of life (QoL) in Taiwan: home versus institutional care services. Archives of Gerontology and Geriatrics 51(2): 159-163, 2010

Quasi-experimental evaluation of a multifaceted intervention to improve quality of end-of-life care and quality of dying for patients with advanced dementia in long-term care institutions. Palliative Medicine 32(3): 613-621, 2018

Quality of care for people with dementia and professional caregivers' perspectives regarding palliative care in Japanese community care settings. International Journal of Geriatric Psychiatry 32(12): 1342-1351, 2017

Do interventions with staff in long-term residential facilities improve quality of care or quality for life people with dementia? A systematic review of the evidence. International Psychogeriatrics 28(12): 1937-1963, 2016

Do interventions with staff in long-term residential facilities improve quality of care or quality of life for people with dementia? A systematic review of the evidence. International Psychogeriatrics 28(12): 1935-1936, 2016

Associated factors with antipsychotic use in long-term institutional care in eight European countries: Results from the RightTimePlaceCare study. Journal of the American Medical Directors Association 15(11): 812-818, 2014

Quality of in-home care, long-term care placement, and the survival of persons with dementia. Aging and Mental Health 19(12): 1093-1102, 2015

Care staff training based on person-centered care and dementia care mapping, and its effects on the quality of life of nursing home residents with dementia. Aging and Mental Health 21(9): 991-996, 2016

Is quality of life being compromised in people with dementia in long-term care?. International Journal of Older people Nursing 5(3): 245-252, 2010

Inter-country exploration of factors associated with admission to long-term institutional dementia care: evidence from the RightTimePlaceCare study. Journal of Advanced Nursing 71(6): 1338-1350, 2015

Quality of end-of-life care of long-term nursing home residents with and without dementia. Journal of the American Geriatrics Society 61(7): 1066-1073, 2013