+ Site Statistics
+ Search Articles
+ PDF Full Text Service
How our service works
Request PDF Full Text
+ Follow Us
Follow on Facebook
Follow on Twitter
Follow on LinkedIn
+ Subscribe to Site Feeds
Most Shared
PDF Full Text
+ Translate
+ Recently Requested

Unmet needs and health care utilization in young adults with cerebral palsy



Unmet needs and health care utilization in young adults with cerebral palsy



Disability and Rehabilitation 30(17): 1254-1262



To gain insight into the unmet needs and utilization of health care of young adults with cerebral palsy (CP) and to explore relations between unmet needs, health care utilization and subject characteristics. A cross-sectional study was performed in 29 young adults with CP without severe learning disabilities (IQ > 70). Subject characteristics such as age, gender, limb distribution, level of gross motor functioning, level of education and perceived participation and autonomy were measured. Outcome measures were the Southampton Needs Assessment Questionnaire, Impact on Participation and Autonomy and a questionnaire on health care utilization. Young adults with CP reported unmet needs mostly on information (79%), mobility (66%) and health care (66%). About half of the participants visited a rehabilitation physician (52%) or a physical therapist (55%) in the past year. Participants with lower levels of gross motor functioning were found to have more unmet needs and visited various health care professionals more often than young adults with higher levels of gross motor functioning. However, participants with higher levels of gross motor functioning still reported several unmet needs. Although young adults with CP frequently receive treatment from health care professionals, they indicate unmet needs with respect to several areas such as information on diagnosis, functional mobility and formal health care. In the treatment of young adults with CP, attention should be paid to these aspects.

Please choose payment method:






(PDF emailed within 0-6 h: $19.90)

Accession: 056765710

Download citation: RISBibTeXText

PMID: 18821192

DOI: 10.1080/09638280701622929


Related references

The health care of young adults with cerebral palsy. Medical Journal of Australia 159(7): 444-446, 1993

Health conditions, functional status and health care utilization in adults with cerebral palsy. Family Practice 35(6): 661-670, 2018

Health Care Transition Experiences of Young Adults With Cerebral Palsy. Journal of Pediatric Nursing 30(5): E157-E164, 2017

Prevalence of high-burden medical conditions and health care resource utilization and costs among adults with cerebral palsy. Clinical Epidemiology Volume 11: 469-481, 2019

Decreased access to health care and social isolation among young adults with cerebral palsy after leaving school. Journal of Orthopaedic Surgery 11(1): 80-89, 2003

Unmet health care needs in children with cerebral palsy: a cross-sectional study. Research in Developmental Disabilities 32(6): 2714-2723, 2012

Care-load for children and young adults with severe cerebral palsy. Developmental Medicine & Child Neurology. 34(11): 979-984, 1992

Experienced problems of young adults with cerebral palsy: targets for rehabilitation care. Archives of Physical Medicine and Rehabilitation 90(11): 1891-1897, 2009

Equitable health services for the young? A decomposition of income-related inequalities in young adults' utilization of health care in Northern Sweden. International Journal for Equity in Health 16(1): 20, 2017

Health issues in young adults with cerebral palsy: towards a life-span perspective. Journal of Rehabilitation Medicine 39(8): 605-611, 2007

The health and quality of life outcomes among youth and young adults with cerebral palsy. Archives of Physical Medicine and Rehabilitation 91(1): 143-148, 2010

Health care services for adults with cerebral palsy. Australian Family Physician 39(3): 165-167, 2010

Daily care activities and hip pain in non-ambulatory children and young adults with cerebral palsy. Journal of Pediatric Rehabilitation Medicine 4(3): 219-223, 2011

Increasing symptoms, met and unmet needs in adults with cerebral palsy or meningomyelocele a longitudinal follow-up. Scandinavian Journal of Disability Research 15(3): 249-263, 2013

Are the health needs of young people with cerebral palsy met during transition from child to adult health care?. Child: Care Health and Development 44(3): 355-363, 2018