+ Site Statistics
+ Search Articles
+ PDF Full Text Service
How our service works
Request PDF Full Text
+ Follow Us
Follow on Facebook
Follow on Twitter
Follow on LinkedIn
+ Subscribe to Site Feeds
Most Shared
PDF Full Text
+ Translate
+ Recently Requested

Completeness assessment of the Breton registry of congenital abnormalities: A checking tool based on hospital discharge data



Completeness assessment of the Breton registry of congenital abnormalities: A checking tool based on hospital discharge data



Revue d'Epidemiologie et de Sante Publique 63(4): 223-235



Exhaustiveness is required for registries. In the Breton registry of congenital abnormalities, cases are recorded at the source. We use hospital discharge data in order to verify the completeness of the registry. In this paper, we present a computerized tool for completeness assessment applied to the Breton registry. All the medical information departments were solicited once a year, asking for infant medical stays for newborns alive at one year old and for mother's stays if not. Files were transmitted by secure messaging and data were processed on a secure server. An identity-matching algorithm was applied and a similarity score calculated. When the record was not linked automatically or manually, the medical record had to be consulted. The exhaustiveness rate was assessed using the capture recapture method and the proportion of cases matched manually was used to assess the identity matching algorithm. The computerized tool bas been used in common practice since June 2012 by the registry investigators. The results presented concerned the years 2011 and 2012. There were 470 potential cases identified from the hospital discharge data in 2011 and 538 in 2012, 35 new cases were detected in 2011 (32 children born alive and 3 stillborn), and 33 in 2012 (children born alive). There were respectively 85 and 137 false-positive cases. The theorical exhaustiveness rate reached 91% for both years. The rate of exact matching amounted to 68%; 6% of the potential cases were linked manually. Hospital discharge databases contribute to the quality of the registry even though reports are made at the source. The implemented tool facilitates the investigator's work. In the future, use of the national identifying number, when allowed, should facilitate linkage between registry data and hospital discharge data.

Please choose payment method:






(PDF emailed within 0-6 h: $19.90)

Accession: 057478105

Download citation: RISBibTeXText

PMID: 26119557

DOI: 10.1016/j.respe.2015.04.012


Related references

Integrating data from multiple sources for data completeness in a web-based registry for pediatric renal transplantation--the CERTAIN Registry. Studies in Health Technology and Informatics 216: 1049, 2015

Can hospital discharge diagnosis be used for surveillance of bacteremia? A data quality study as a Danish hospital discharge registry. Infection Control & Hospital Epidemiology 19(3): 175-180, 1998

Epidemiologic data on adult glaucomas. Data from the Hospital Discharge Registry and the Registry of Right to Free Medication. Acta Ophthalmologica 67(2): 184-191, 1989

The data quality of haematological malignancy ICD-10 diagnoses in a population-based hospital discharge registry. European Journal of Cancer Prevention 14(3): 201-206, 2005

Completeness and accuracy of the birth registry data on congenital anomalies in Alberta, Canada. Chronic Diseases in Canada 22(2): 57-66, 2001

Improving case ascertainment of a population-based birth defects registry in New York State using hospital discharge data. Birth Defects Research. Part A Clinical and Molecular Teratology 73(10): 663-668, 2005

Checking coding completeness by mining discharge summaries. Studies in Health Technology and Informatics 169: 594-598, 2011

Analyses of data quality in registries concerning diabetes mellitus--a comparison between a population based hospital discharge and an insulin prescription registry. Journal of Medical Systems 20(1): 1-10, 1996

Assessment of readability, understandability, and completeness of pediatric hospital medicine discharge instructions. Journal of Hospital Medicine 12(2): 98, 2017

An Innovative Approach to Improve Completeness of Treatment and Other Key Data Elements in a Population-Based Cancer Registry: A15-Month Data Submission. Journal of Registry Management 44(2): 69-75, 2017

An assessment of reliability and completeness of Bombay Cancer Registry data (1963 - 1985). Indian Journal of Cancer 25(3): 177-190, 1988

Estimating the completeness of prevalence based on cancer registry data. Statistics In Medicine. 16(4): 425-440, 1997

Altered Executive Function in Older Heart Failure Patients at Hospital Discharge: New Data from the Montreal Cognitive Assessment Tool. Journal of Cardiac Failure 19(8): S83-S84, 2013

An Assessment of Improvement in Reliability and Completeness of Mumbai Cancer Registry Data from 1964-1997. Asian Pacific Journal of Cancer Prevention 2(3): 225-232, 2003

Predictive value and completeness of the registration of congenital abnormalities in three Danish population-based registries. Scandinavian Journal of Public Health 31(1): 12-16, 2003