+ Site Statistics
+ Search Articles
+ PDF Full Text Service
How our service works
Request PDF Full Text
+ Follow Us
Follow on Facebook
Follow on Twitter
Follow on LinkedIn
+ Subscribe to Site Feeds
Most Shared
PDF Full Text
+ Translate
+ Recently Requested

Enhancing Clinical Content and Race/Ethnicity Data in Statewide Hospital Administrative Databases: Obstacles Encountered, Strategies Adopted, and Lessons Learned



Enhancing Clinical Content and Race/Ethnicity Data in Statewide Hospital Administrative Databases: Obstacles Encountered, Strategies Adopted, and Lessons Learned



Health Services Research 50(Suppl. 1): 1300-1321



Eight grant teams used Agency for Healthcare Research and Quality infrastructure development research grants to enhance the clinical content of and improve race/ethnicity identifiers in statewide all-payer hospital administrative databases. Grantees faced common challenges, including recruiting data partners and ensuring their continued effective participation, acquiring and validating the accuracy and utility of new data elements, and linking data from multiple sources to create internally consistent enhanced administrative databases. Successful strategies to overcome these challenges included aggressively engaging with providers of critical sources of data, emphasizing potential benefits to participants, revising requirements to lessen burdens associated with participation, maintaining continuous communication with participants, being flexible when responding to participants' difficulties in meeting program requirements, and paying scrupulous attention to preparing data specifications and creating and implementing protocols for data auditing, validation, cleaning, editing, and linking. In addition to common challenges, grantees also had to contend with unique challenges from local environmental factors that shaped the strategies they adopted. The creation of enhanced administrative databases to support comparative effectiveness research is difficult, particularly in the face of numerous challenges with recruiting data partners such as competing demands on information technology resources. Excellent communication, flexibility, and attention to detail are essential ingredients in accomplishing this task. Additional research is needed to develop strategies for maintaining these databases when initial funding is exhausted.

Please choose payment method:






(PDF emailed within 0-6 h: $19.90)

Accession: 057773703

Download citation: RISBibTeXText

PMID: 26119470

DOI: 10.1111/1475-6773.12330


Related references

Enhancing the Value of Statewide Hospital Discharge Data: Improving Clinical Content and Race-Ethnicity Data. Health Services Research 50(Suppl. 1): 1265-1272, 2015

Hospital practices in the collection of patient race, ethnicity, and language data: a statewide survey, California, 2011. Journal of Health Care for the Poor and Underserved 25(3): 1384-1396, 2014

Race and ethnicity reporting in statewide hospital data: progress and future challenges in a key resource for local and state monitoring of health disparities. Journal of Public Health Management and Practice 17(2): 167-173, 2012

Race/ethnicity in medical charts and administrative databases of patients served by community health centers. Ethnicity and Disease 16(2): 483-487, 2006

Use of administrative data or clinical databases as predictors of risk of death in hospital: comparison of models. Bmj 334(7602): 1044, 2007

A new method for estimating race/ethnicity and associated disparities where administrative records lack self-reported race/ethnicity. Health Services Research 43(5 Pt 1): 1722-1736, 2008

Enhancing Nationwide Medico-Administrative Databases Analysis with SAF4SUHAD: A Statistical Analysis Framework for Secondary Use of Healthcare Administrative Databases. Studies in Health Technology and Informatics 255: 25-29, 2018

Physical activity and cardiovascular health: lessons learned from epidemiological studies across age, gender, and race/ethnicity. Circulation 122(7): 743-752, 2010

Improving Accuracy and Relevance of Race/Ethnicity Data: Results of a Statewide Collaboration in Hawaii. Journal for Healthcare Quality 38(5): 314-321, 2018

Implementing a Statewide Safe to Sleep Hospital Initiative: Lessons Learned. Journal of Community Health 43(4): 768-774, 2018

Self-reported vs administrative race/ethnicity data and study results. American Journal of Public Health 92(9): 1471-1472, 2002

Examining Race and Ethnicity Information in Medicare Administrative Data. Medical Care (): -, 2016

Agreement between administrative data and patients' self-reports of race/ethnicity. American Journal of Public Health 93(10): 1734-1739, 2003

Examining Race and Ethnicity Information in Medicare Administrative Data. Medical Care 55(12): E170-E176, 2017

Agreement assessment of key maternal and newborn data elements between birth registry and Clinical Administrative Hospital Databases in Ontario, Canada. Archives of Gynecology and Obstetrics 300(1): 135-143, 2019