+ Site Statistics
+ Search Articles
+ PDF Full Text Service
How our service works
Request PDF Full Text
+ Follow Us
Follow on Facebook
Follow on Twitter
Follow on LinkedIn
+ Subscribe to Site Feeds
Most Shared
PDF Full Text
+ Translate
+ Recently Requested

Necessary but not sufficient? Engaging young people in the development of an avatar-based online intervention designed to provide psychosocial support to young people affected by their own or a family member's cancer diagnosis



Necessary but not sufficient? Engaging young people in the development of an avatar-based online intervention designed to provide psychosocial support to young people affected by their own or a family member's cancer diagnosis



Health Expectations 20(3): 459-470



This study discusses the challenges and successes of engaging young people in a project aimed at developing an online counselling intervention for young people affected by cancer. For younger people with a diagnosis of cancer or who are caring for someone with cancer, the psychosocial consequences can create significant challenges for their social and educational development. Whilst young people have been shown to be reluctant to make use of traditional face-to-face counselling, research is beginning to suggest that effective therapeutic relationships can be formed with young people online. The first phase of the study involved working with a 'Young Persons' Panel' of healthy school pupils and university students to develop and pilot an online counselling intervention and study materials in preparation for a pilot evaluation of the intervention. An avatar-based virtual reality counselling world was created where young people can create their own avatar and receive counselling over the Internet from a qualified counsellor via an avatar in a virtual reality world. The process of engaging young people in the C:EVOLVE project enabled a unique intervention to be developed and demonstrated positive developmental opportunities. However, despite the rigorous approach to the development of the intervention, initial attempts within the pilot evaluation phase of the study showed difficulties recruiting to the study, and this phase of the study has currently ceased whilst further exploratory work takes place. This study has demonstrated the complexities of intervention development and evaluation research targeted at young people and the challenges created when attempting to bring clinical practice and research evaluation together.

Please choose payment method:






(PDF emailed within 0-6 h: $19.90)

Accession: 058383249

Download citation: RISBibTeXText

PMID: 27292018

DOI: 10.1111/hex.12473


Related references

Development and evaluation of an intervention to support family caregivers of people with cancer to provide home-based care at the end of life: a feasibility study. European Journal of Oncology Nursing 19(2): 154-161, 2015

A critical review of the use of technology to provide psychosocial support for children and young people with long-term conditions. Journal of Pediatric Nursing 30(1): 87, 2015

Peer-based Social Support for Young-People with Juvenile Arthritis: Views of Young People, Parents/Carers and Healthcare Professionals within the UK. Journal of Pediatric Nursing 43: E85-E91, 2018

Development of an online well-being intervention for young people: an evaluation protocol. Jmir Research Protocols 4(2): E48, 2015

"Young people, adult worries": RCT of an internet-based self-support method "Feel the ViBe" for children, adolescents and young adults exposed to family violence, a study protocol. Bmc Public Health 13: 226-226, 2013

Camp-based psychosocial intervention dosage and changes in independence in young people with spina bifida. Developmental Medicine and Child Neurology 61(12): 1392-1399, 2019

The rights of young people in the EC. A comparative study of the legal status of young people in the ten member states. Droits des jeunes dans la Communaute Europeene Une etude comparative sur le statut legal des jeunes dans les dix etats membres: 131, 1982

Psychosocial Well-Being of Young People Who Participated in a Support Group Following the Loss of a Parent to Cancer. Journal of Social Work in End-Of-Life and Palliative Care 13(1): 44-60, 2017

Online information and support needs of young people with cancer: a participatory action research study. Adolescent Health Medicine and Therapeutics 9: 121-135, 2018

Young People, Adult Worries: Randomized Controlled Trial and Feasibility Study of the Internet-Based Self-Support Method "Feel the ViBe" for Adolescents and Young Adults Exposed to Family Violence. Journal of Medical Internet Research 19(6): E204, 2017

A randomized controlled trial of a manual-based psychosocial group intervention for young people with epilepsy [PIE. Epilepsy and Behavior 72: 89-98, 2017

A new Australian online and phone mental health support service for young people living with cancer. Australasian Psychiatry 22(2): 165-169, 2014

Anxiety and depression symptoms in young people with perinatally acquired HIV and HIV affected young people in England. Aids Care 30(8): 1040-1049, 2018

Young people in coerced drug treatment: Does the UK Drug Intervention Programme provide a useful and effective service to young offenders?. Addiction Research and Theory 17(1): 17-29, 2009

Officer attitudes towards intra-group aggression in young people and young adults: does the reported motivation of an aggressor impact on intervention and support?. International Journal of Law and Psychiatry 34(5): 309-316, 2011