+ Site Statistics
+ Search Articles
+ PDF Full Text Service
How our service works
Request PDF Full Text
+ Follow Us
Follow on Facebook
Follow on Twitter
Follow on LinkedIn
+ Subscribe to Site Feeds
Most Shared
PDF Full Text
+ Translate
+ Recently Requested

Parents' experiences of hope following a child's brain injury



Parents' experiences of hope following a child's brain injury



Nursing Children and Young people 27(7): 22-26



To explore the lived experiences of parents caring for their child following a severe to moderate acquired brain injury (ABI). A Heideggerian phenomenological approach was used and the research set within the naturalistic paradigm. Eight parents were identified using purposive sampling. Each parent was interviewed on a one-to-one basis using semi-structured interviews. The interviews were typed up verbatim and the data were analysed using thematic analysis. Every parent acknowledged the need to maintain hope. The other themes identified were: the effects on the child post ABI, the need for accurate information, emotional support, effects on the family, fear of death, transition, family accommodation and funding. Following a childhood brain injury it is important that parents can maintain a sense of hope and receive emotional support and accurate information. Staff could use these research findings to increase their awareness and inform their own practice.

Please choose payment method:






(PDF emailed within 0-6 h: $19.90)

Accession: 058505315

Download citation: RISBibTeXText

PMID: 26360179

DOI: 10.7748/ncyp.27.7.22.e618


Related references

Parenting a child with a traumatic brain injury: experiences of parents and health professionals. Brain Injury 27(13-14): 1570-1582, 2013

Parents' experiences of their child's return to school following acquired brain injury (ABI): A systematic review of qualitative studies. Brain Injury 30(7): 829-838, 2016

What are the experiences of the child with a brain tumour and their parents?. European Journal of Oncology Nursing 13(4): 255-261, 2009

The tenacity and tenuousness of hope: parental experiences of hope when their child has a poor cancer prognosis. Cancer Nursing 36(5): 408-416, 2014

The power of hope: patients' experiences of hope a year after acute spinal cord injury. Journal of Clinical Nursing 15(3): 315-323, 2006

Can, Want and Try: Parents' Viewpoints Regarding the Participation of Their Child with an Acquired Brain Injury. Plos one 11(7): E0157951, 2016

Parents' experiences following children's moderate to severe traumatic brain injury: a clash of cultures. Qualitative Health Research 21(10): 1413-1426, 2011

Parents' voices: 'why and how we advocate'. A meta-synthesis of parents' experiences of advocating for their child with autism spectrum disorder. Child: Care Health and Development 42(6): 784-797, 2016

Practical experiences with open groups of parents in a child guidance center. Report based on a catamnestic interview with parents. Praxis der Kinderpsychologie und Kinderpsychiatrie 14(4): 125-140, 1965

Parents and teachers reporting on a child's emotional and behavioural problems following severe traumatic brain injury (TBI): the moderating effect of time. Brain Injury 29(4): 481-489, 2015

Faith, Hope, and Spirituality: SUPPORTING PARENTS WHEN THEIR CHILD HAS A LIFE-LIMITING ILLNESS. Journal of Christian Nursing 33(1): 14-21, 2016

Is my child sick? Parents' management of signs of illness and experiences of the medical encounter: parents of recurrently sick children urge for more cooperation. Scandinavian Journal of Primary Health Care 29(1): 23-27, 2011

Until the last breath: exploring the concept of hope for parents and health care professionals during a child's serious illness. Archives of Pediatrics and Adolescent Medicine 163(7): 653-657, 2009

The lived experience of hope among parents of a child with Duchenne muscular dystrophy: perceiving the human being beyond the illness. Chronic Illness 5(2): 103-114, 2009

Transparency, Hope, and Empowerment A Model for Partnering With Parents of a Child With Autism Spectrum Disorder at Diagnosis and Beyond. Social Work in Mental Health 10(4): 311-330, 2012