+ Site Statistics
References:
54,258,434
Abstracts:
29,560,870
PMIDs:
28,072,757
+ Search Articles
+ Subscribe to Site Feeds
Most Shared
PDF Full Text
+ PDF Full Text
Request PDF Full Text
+ Follow Us
Follow on Facebook
Follow on Twitter
Follow on LinkedIn
+ Translate
+ Recently Requested

Preparedness for Death: How Caregivers of Elders With Dementia Define and Perceive its Value



Preparedness for Death: How Caregivers of Elders With Dementia Define and Perceive its Value



Gerontologist 57(6): 1093-1102



The purpose of this study is to ascertain how bereaved caregivers of a family member who died from a dementia-related diagnosis (a) define preparedness and (b) perceive its value. Purposive criterion sampling was employed to identify 30 bereaved caregivers of family members aged 65 and older who died with a dementia-related diagnosis. In-depth, qualitative interviews were conducted over a 12-month period, and qualitative content analysis was used to analyze the data. Only one third (n = 10) of caregivers interviewed were prepared for the death, and the majority who were prepared were enrolled in hospice. Five primary themes revealed ways that caregivers define various domains of preparedness: (i) accepting reality; (ii) knowing death is near; (iii) getting your "house in order"; (iv) saying "what you need to say"; and (v) giving "permission" to die. The majority (87%) believed that it is important for caregivers to be prepared, and the value of preparedness was exemplified in five domains reflecting the benefits of being prepared. The results support further attention to the development and testing of interventions to address the unmet needs of caregivers of family members with dementia to help prepare them for the death in a variety of contexts.

(PDF emailed within 0-6 h: $19.90)

Accession: 058609323

Download citation: RISBibTeXText

PMID: 27342441

DOI: 10.1093/geront/gnw092


Related references

Barriers and Facilitators to Preparedness for Death: Experiences of Family Caregivers of Elders with Dementia. Journal of Social Work in End-Of-Life and Palliative Care 2019: 1-20, 2019

What Does Death Preparedness Mean for Family Caregivers of Persons With Dementia?. American Journal of Hospice and Palliative Care 36(5): 436-446, 2018

Preparedness for the death of a loved one and mental health in bereaved caregivers of patients with dementia: findings from the REACH study. Journal of Palliative Medicine 9(3): 683-693, 2006

Culture and dementia: accounts by family caregivers and health professionals for dementia-affected elders in South Korea. Journal of Cross-Cultural Gerontology 16(2): 111-125, 2003

Do family caregivers perceive more difficulty when they look after patients with early onset dementia compared to those with late onset dementia?. International Journal of Geriatric Psychiatry 22(12): 1255-1261, 2007

Telecommunication interventions for caregivers of elders with dementia. Ans. Advances in Nursing Science 20(3): 76-88, 1998

An educational intervention to support caregivers of elders with dementia. American Journal of Alzheimer's Disease and Other Dementias 23(3): 233-241, 2008

Need for Resourcefulness Training for Women Caregivers of Elders with Dementia. Issues in Mental Health Nursing 36(12): 1007-1012, 2017

Perceived needs of African-American caregivers of elders with dementia. Journal of the National Medical Association 93(2): 47-57, 2003

Decision-making by family caregivers of elders experiencing dementia. American Journal of Alzheimer's Disease and Other Dementias 15(6): 361-366, 2000

Elders with dementia living in the community with and without caregivers: an epidemiological study. International Psychogeriatrics 11(3): 235-250, 1999

A one-year follow-up study of family caregivers of institutionalized elders with dementia. American Journal of Alzheimer's Disease and Other Dementias 15(4): 229-238, 2000

Benefits of a poetry writing intervention for family caregivers of elders with dementia. Issues in Mental Health Nursing 32(9): 598-604, 2012

Depression among Low-Income Female Muslim Uyghur and Kazakh Informal Caregivers of Disabled Elders in Far Western China: Influence on the Caregivers' Burden and the Disabled Elders' Quality of Life. Plos One 11(5): E0156382, 2017

Influences of mutuality, preparedness, and balance on caregivers of patients with dementia. Journal of Nursing Research 18(3): 155-163, 2010