+ Site Statistics
+ Search Articles
+ PDF Full Text Service
How our service works
Request PDF Full Text
+ Follow Us
Follow on Facebook
Follow on Twitter
Follow on LinkedIn
+ Subscribe to Site Feeds
Most Shared
PDF Full Text
+ Translate
+ Recently Requested

Healthcare organisation and delivery for people with dementia and comorbidity: a qualitative study exploring the views of patients, carers and professionals

Healthcare organisation and delivery for people with dementia and comorbidity: a qualitative study exploring the views of patients, carers and professionals

Bmj Open 7(1): E013067

People living with dementia (PLWD) have a high prevalence of comorbidty. The aim of this study was to explore the impact of dementia on access to non-dementia services and identify ways of improving service delivery for this population. Qualitative study involving interviews and focus groups. Thematic content analysis was informed by theories of continuity of care and access to care. Primary and secondary care in the South and North East of England. PLWD who had 1 of the following comorbidities-diabetes, stroke, vision impairment, their family carers and healthcare professionals (HCPs) in the 3 conditions. We recruited 28 community-dwelling PLWD, 33 family carers and 56 HCPs. Analysis resulted in 3 overarching themes: (1) family carers facilitate access to care and continuity of care, (2) the impact of the severity and presentation of dementia on management of comorbid conditions, (3) communication and collaboration across specialities and services is not dementia aware. We found examples of good practice, but these tended to be about the behaviour of individual practitioners rather than system-based approaches; current systems may unintentionally block access to care for PLWD. This study suggests that, in order to improve access and continuity for PLWD and comorbidity, a significant change in the organisation of care is required which involves: coproduction of care where professionals, PLWD and family carers work in partnership; recognition of the way a patient's diagnosis of dementia affects the management of other long-term conditions; flexibility in services to ensure they are sensitive to the changing needs of PLWD and their family carers over time; and improved collaboration across specialities and organisations. Research is needed to develop interventions that support partnership working and tailoring of care for PLWD and comorbidity.

Please choose payment method:

(PDF emailed within 0-6 h: $19.90)

Accession: 059787702

Download citation: RISBibTeXText

PMID: 28100562

DOI: 10.1136/bmjopen-2016-013067

Related references

Causes of crises and appropriate interventions: the views of people with dementia, carers and healthcare professionals. Aging and Mental Health 17(3): 328-335, 2013

Exploring the views of GPs, people with dementia and their carers on assistive technology: a qualitative study. Bmj Open 6(5): E011132, 2016

What do carers of people with psychosis need from mental health services? Exploring the views of carers, service users and professionals. Journal of Family Therapy 31(3): 310-331, 2009

What would most help improve the quality of life of older family carers of people with dementia? A qualitative study of carers' views. Dementia 2018: 1471301218791906, 2018

'I don't think I'd be frightened if the statins went': a phenomenological qualitative study exploring medicines use in palliative care patients, carers and healthcare professionals. Bmc Palliative Care 15: 13, 2016

Dementia case-finding in hospitals: a qualitative study exploring the views of healthcare professionals in English primary care and secondary care. Bmj Open 8(3): E020521, 2018

C0386 A meta-synthesis of qualitative studies exploring patients' and healthcare professionals views of atrial fibrillation and oral anticoagulant therapy. Thrombosis Research 130: S112-S113, 2012

Peer-based Social Support for Young-People with Juvenile Arthritis: Views of Young People, Parents/Carers and Healthcare Professionals within the UK. Journal of Pediatric Nursing 43: E85-E91, 2018

A qualitative study of carers' and professionals' views on the management of people with intellectual disability and epilepsy: a neglected population. Epilepsy and Behavior 28(3): 379-385, 2013

Is it time to abandon care planning in mental health services? A qualitative study exploring the views of professionals, service users and carers. Health Expectations 21(3): 597-605, 2018

End-of-life care: A qualitative study comparing the views of people with dementia and family carers. Palliative Medicine 32(3): 631-642, 2018

Palliative care services for people with dementia: a synthesis of the literature reporting the views and experiences of professionals and family carers. Dementia 13(1): 96, 2014

A qualitative study exploring the views, attitudes and beliefs of patients and health professionals towards exercise intervention for people who are surgically treated for lung cancer. European Journal of Cancer Care 27(2): E12828, 2018

Medication adherence in schizophrenia: exploring patients', carers' and professionals' views. Schizophrenia Bulletin 32(4): 786-794, 2006

How family carers of people with dementia experienced their stay on an acute care facility and their own collaboration with professionals: a qualitative study. Pflege 24(4): 229-237, 2011