+ Site Statistics
+ Search Articles
+ PDF Full Text Service
How our service works
Request PDF Full Text
+ Follow Us
Follow on Facebook
Follow on Twitter
Follow on LinkedIn
+ Subscribe to Site Feeds
Most Shared
PDF Full Text
+ Translate
+ Recently Requested

Online support groups offer low-threshold backing for family and friends of patients with prostate cancer

Online support groups offer low-threshold backing for family and friends of patients with prostate cancer

European Journal of Cancer Care 2018: E12982-E12982

A prostate cancer diagnosis affects not only the patients but also their family and friends. We performed a secondary analysis of a survey of users of the largest German online support group (OSG) for prostate cancer. We collected socio-demographic, psychological and disease-related data over a three-month period in 2013. Among 769 participants with a complete questionnaire, 686 were patients, and 83 were family members and friends of other patients. The family and friends group comprised 33% spouses, 31% children and 36% people with other relationships to the patient ("others"). Compared to the patient group, the family and friends group showed higher scores for anxiety and depression and described a higher rate of metastatic disease in the patients with whom they had a relationship. The children of patients showed the highest psychological burden based on their scores for anxiety and depression. Only 7% of spouses and none of the children attended face-to-face support groups, compared to 70% of people in the "others" group. OSGs offer low-threshold support for family members and friends; specifically, they meet the needs of spouses and children who do not attend face-to-face support groups. To improve counselling efforts, physicians should be aware of this online resource.

Please choose payment method:

(PDF emailed within 0-6 h: $19.90)

Accession: 066024479

Download citation: RISBibTeXText

PMID: 30569592

DOI: 10.1111/ecc.12982

Related references

Online support groups for patients with prostate cancer. Aktuelle Urologie 2019, 2019

Prostate cancer support and advocacy groups: their role for patients and family members. Seminars in Urologic Oncology 20(1): 45-54, 2002

Differences among breast and prostate cancer online support groups. Computers in Human Behavior 26(6): 1400-1404, 2010

Social support and cancer: adult patients' desire for support from family, friends, and health professionals. American Journal of Community Psychology 18(3): 439-464, 1990

The effect of an online support group on patients׳ treatment decisions for localized prostate cancer: An online survey. Urologic Oncology 35(2): 37.E19-37.E28, 2016

Online support groups for localized prostate cancer: qualitative analysis of decision making. Der Urologe. Ausg. a 49(11): 1377-1384, 2011

Are online support groups always beneficial? A qualitative exploration of the empowering and disempowering processes of participation within HIV/AIDS-related online support groups. International Journal of Nursing Studies 51(7): 983-993, 2015

Gender and online cancer support groups: issues facing male cancer patients. Journal of Cancer Education 23(3): 167-171, 2008

What is the role of online support from the perspective of facilitators of face-to-face support groups? A multi-method study of the use of breast cancer online communities. Patient Education and Counseling 93(3): 472-479, 2015

Face-to-face vs. online peer support groups for prostate cancer: A cross-sectional comparison study. Journal of Cancer Survivorship 12(1): 1-9, 2017

Understanding the support needs of patients accessing test results online. PHRs offer great promise, but support issues must be addressed to ensure appropriate access. Journal of Healthcare Information Management 24(1): 57-63, 2010

Comparing support to breast cancer patients from online communities and face-to-face support groups. Patient Education and Counseling 85(2): E95-100, 2012

Association of support from family and friends with self-leadership for making long-term lifestyle changes in patients with colorectal cancer. European Journal of Cancer Care 27(3): E12846, 2018

Demographic characteristics, call details and psychosocial support needs of the family/friends of someone diagnosed with cancer who access Australian Cancer Council telephone information and support services. European Journal of Oncology Nursing 28: 86-91, 2017

Benefiting from social capital in online support groups: an empirical study of cancer patients. Cyberpsychology and Behavior 10(4): 587-590, 2007