+ Site Statistics
+ Search Articles
+ PDF Full Text Service
How our service works
Request PDF Full Text
+ Follow Us
Follow on Facebook
Follow on Twitter
Follow on LinkedIn
+ Subscribe to Site Feeds
Most Shared
PDF Full Text
+ Translate
+ Recently Requested

Informal caregivers' well-being and care recipients' quality of life and community reintegration - findings from a stroke survivor sample

Informal caregivers' well-being and care recipients' quality of life and community reintegration - findings from a stroke survivor sample

Scandinavian Journal of Caring Sciences 33(3): 641-650

Stroke is highly debilitating and requires long-term care. Informal caregivers of stroke survivors play important roles in stroke rehabilitation. Caring for stroke survivors can negatively affect the caregivers' well-being and may adversely impact on their caregiving quality and subsequently on stroke survivors' well-being. There seems to be a dearth of research on the relationships between caregivers' and stroke survivors' well-being. This study was designed to determine the relationships among informal caregivers' burden and quality of life (QOL) and stroke survivors' QOL and community reintegration. This ethically certified cross-sectional survey involved 82 stroke survivors (mean age = 60.48 ± 11.13 years) and their 82 primary caregivers (mean age = 36.13 ± 13.69 years) consecutively recruited from seven conveniently sampled tertiary hospitals in Nigeria. Caregivers Strain Index, Igbo-culture adapted Maleka Stroke Community Reintegration Measure and Short-Form 36-item Health Survey questionnaires were used to assess the caregivers' burden, survivors' community reintegration and QOL (of survivors and caregivers), respectively. Data were analysed using descriptive statistics, Spearman rank, Mann-Whitney U and Kruskal-Wallis tests at alpha level of 0.05. The mean stroke survivors' community reintegration and QOL were 34.05 ± 21.54% and 34.93 ± 16 ± 49%, respectively. The mean caregivers' QOL and burden scores were 74.49 ± 12.61% and 9.13 ± 3.18, respectively. About 80.5% of the caregivers experienced significant burden. Stroke survivors' QOL and community reintegration, and caregivers' QOL and burden significantly correlated with one another (p < 0.05). Poststroke duration, survivor-caregiver cohabitation duration, survivors' community-dwelling duration and daily care-giving hours significantly correlated with each of stroke survivors' community reintegration and QOL, and caregivers' burden and QOL (p < 0.05). Stroke survivors' community reintegration and QOL were poor while caregivers' had moderate QOL and high prevalence of significant burden. Significant correlations exist between caregivers' well-being and stroke survivors' QOL and community reintegration. Interventions targeted at reducing caregivers' burden may help improve both caregivers and survivors' well-being.

Please choose payment method:

(PDF emailed within 0-6 h: $19.90)

Accession: 066471940

Download citation: RISBibTeXText

PMID: 30734330

DOI: 10.1111/scs.12657

Related references

Quality of life of Nigerian informal caregivers of community-dwelling stroke survivors. Scandinavian Journal of Caring Sciences 27(4): 977-982, 2013

Life satisfaction of two-year post-stroke survivors: effects of socio-economic factors, motor impairment, Newcastle stroke-specific quality of life measure and World Health Organization quality of life: bref of informal caregivers in Luxembourg and a rural area in Portugal. Cerebrovascular Diseases 33(3): 219-230, 2012

Validation of the Care-Related Quality of Life Instrument in different study settings: findings from The Older Persons and Informal Caregivers Survey Minimum DataSet (TOPICS-MDS). Quality of Life Research 24(5): 1281-1293, 2015

Depressive symptoms of informal caregivers are associated with those of community-dwelling dependent care recipients. International Psychogeriatrics 22(8): 1310-1317, 2010

Care for the caregivers: a review of self-report instruments developed to measure the burden, needs, and quality of life of informal caregivers. Journal of Pain and Symptom Management 26(4): 922-953, 2003

Profile, Burden, and Quality of Life of Israeli Stroke Survivor Caregivers. Journal of Neuroscience Nursing 41(2): 92-105, 2009

Determinants of quality of life in stroke survivors and their informal caregivers. Stroke 36(4): 803-808, 2005

Quality of life and burden of informal caregivers of stroke survivors. Hong Kong PhysioTherapy Journal 32(1): 6-12, 2014

Psychological distress, quality of life, and burden in caregivers during community reintegration after spinal cord injury. Archives of Physical Medicine and Rehabilitation 95(7): 1312-1319, 2014

Profile, burden, and quality of life of Israeli stroke survivor caregivers: a longitudinal study. Journal of Neuroscience Nursing 41(2): 92, 2009

Quality of life of stroke survivors and their informal caregivers: A prospective study. Disability and Health Journal 9(2): 306-312, 2016

End-of-life care: findings from a national survey of informal caregivers. Archives of Internal Medicine 167(1): 40-46, 2007

Predictors of Discrepancy Between Care Recipients With Mild-to-Moderate Dementia and Their Caregivers on Perceptions of the Care Recipients' Quality of Life. American Journal of Alzheimer's Disease and other Dementias 31(6): 508-515, 2016

Can caregivers report their care recipients' post-stroke hospitalizations and outpatient visits accurately? Findings of an Asian prospective stroke cohort. Bmc Health Services Research 18(1): 817, 2018

Care recipients' physical frailty is independently associated with subjective burden in informal caregivers in the community setting: a cross-sectional study. Bmc Geriatrics 16(1): 186, 2016