+ Site Statistics
+ Search Articles
+ PDF Full Text Service
How our service works
Request PDF Full Text
+ Follow Us
Follow on Facebook
Follow on Twitter
Follow on LinkedIn
+ Subscribe to Site Feeds
Most Shared
PDF Full Text
+ Translate
+ Recently Requested

Transitions from child to adult health care for young people with intellectual disabilities: A systematic review



Transitions from child to adult health care for young people with intellectual disabilities: A systematic review



Journal of Advanced Nursing 2019:



To examine the experiences of health transitions for young people with intellectual disabilities and their carers and identify the implications for nursing practice. A systematic review and critical appraisal of qualitative, quantitative, and mixed methods studies. A search of the relevant literature published 2007-2017 was carried out in AMED, ASSIA, CINAHL, MEDLINE, PsycINFO, PubMed, and Science Direct Sociological Abstracts databases. A total of 12 of 637 papers identified in the search met the inclusion criteria for this review. A narrative review of the papers was undertaken by synthesizing the key findings and grouping them into concepts and emergent themes. Four main themes were identified: (a) becoming an adult; (b) fragmented transition process and care; (c) parents as advocates in emotional turmoil; and (d) making transitions happen. The range of issues that have an impact on the transition from child to adult health services for young people with intellectual disabilities and their carers raise important implications for policy development, nursing practice, and education.

Please choose payment method:






(PDF emailed within 0-6 h: $19.90)

Accession: 066541358

Download citation: RISBibTeXText

PMID: 30816570

DOI: 10.1111/jan.13985


Related references

What Effect Does Transition Have on Health and Well-Being in Young People with Intellectual Disabilities? A Systematic Review. Journal of Applied Research in Intellectual Disabilities 30(5): 805-823, 2017

Systematic Reviews of the Health or Health care of People with Intellectual Disabilities: A Systematic Review to Identify Gaps in the Evidence Base. Journal of Applied Research in Intellectual Disabilities 28(6): 455-523, 2015

Advance Care Planning in Palliative Care for People With Intellectual Disabilities: A Systematic Review. Journal of Pain and Symptom Management 54(6): 938-960.E1, 2017

Health assessment instruments for people with intellectual disabilities-A systematic review. Research in Developmental Disabilities 64: 12-24, 2017

Exercise interventions to improve balance for young people with intellectual disabilities: a systematic review and meta-analysis. Developmental Medicine and Child Neurology 61(4): 406-418, 2019

The impact of health checks for people with intellectual disabilities: a systematic review of evidence. Journal of Intellectual Disability Research 55(11): 1009-1019, 2011

Mainstream health professionals' stigmatising attitudes towards people with intellectual disabilities: a systematic review. Journal of Intellectual Disability Research 61(5): 411-434, 2017

Hospital admissions for physical health conditions for people with intellectual disabilities: Systematic review. Journal of Applied Research in Intellectual Disabilities 31(Suppl. 1): 1-10, 2018

The impact of health checks for people with intellectual disabilities: an updated systematic review of evidence. Research in Developmental Disabilities 35(10): 2450-2462, 2014

Lost in transition or translation? Care philosophies and transitions between child and youth and adult mental health services: a systematic review. Journal of Mental Health 28(4): 379-388, 2019

How to improve sharing and application of knowledge in care and support for people with intellectual disabilities? A systematic review. Journal of Intellectual Disability Research 62(6): 496-520, 2018

Transferring young people with profound intellectual and multiple disabilities from pediatric to adult medical care: parents' experiences and recommendations. Intellectual and Developmental Disabilities 51(3): 176-189, 2013

Health of people with intellectual disabilities: a review of factors influencing access to health care. British Journal of Health Psychology 10(Pt 4): 559-570, 2005

Facilitators and Barriers to Person-centred Care in Child and Young People Mental Health Services: A Systematic Review. Clinical Psychology and PsychoTherapy 24(4): 870-886, 2017

Health inequalities experienced by children and young people with intellectual disabilities: a review of literature from the United Kingdom. Journal of Intellectual Disabilities 15(4): 269-278, 2011