+ Site Statistics
+ Search Articles
+ PDF Full Text Service
How our service works
Request PDF Full Text
+ Follow Us
Follow on Facebook
Follow on Twitter
Follow on LinkedIn
+ Subscribe to Site Feeds
Most Shared
PDF Full Text
+ Translate
+ Recently Requested

Toward Common Data Elements for International Research in Long-term Care Homes: Advancing Person-Centered Care



Toward Common Data Elements for International Research in Long-term Care Homes: Advancing Person-Centered Care



Journal of the American Medical Directors Association 20(5): 598-603



To support person-centered, residential long-term care internationally, a consortium of researchers in medicine, nursing, behavioral, and social sciences from 21 geographically and economically diverse countries have launched the WE-THRIVE consortium to develop a common data infrastructure. WE-THRIVE aims to identify measurement domains that are internationally relevant, including in low-, middle-, and high-income countries, prioritize concepts to operationalize domains, and specify a set of data elements to measure concepts that can be used across studies for data sharing and comparisons. This article reports findings from consortium meetings at the 2016 meeting of the Gerontological Society of America and the 2017 meeting of the International Association of Gerontology and Geriatrics, to identify domains and prioritize concepts, following best practices to identify common data elements (CDEs) that were developed through the US National Institutes of Health/National Institute of Nursing Research's CDEs initiative. Four domains were identified, including organizational context, workforce and staffing, person-centered care, and care outcomes. Using a nominal group process, WE-THRIVE prioritized 21 concepts across the 4 domains. Several concepts showed similarity to existing measurement structures, whereas others differed. Conceptual similarity (convergence; eg, concepts in the care outcomes domain of functional level and harm-free care) provides further support of the critical foundational work in LTC measurement endorsed and implemented by regulatory bodies. Different concepts (divergence; eg, concepts in the person-centered care domain of knowing the person and what matters most to the person) highlights current gaps in measurement efforts and is consistent with WE-THRIVE's focus on supporting resilience and thriving for residents, family, and staff. In alignment with the World Health Organization's call for comparative measurement work for health systems change, WE-THRIVE's work to date highlights the benefits of engaging with diverse LTC researchers, including those in low-, middle-, and high-income countries, to develop a measurement infrastructure that integrates the aspirations of person-centered LTC.

Please choose payment method:






(PDF emailed within 0-6 h: $19.90)

Accession: 066550088

Download citation: RISBibTeXText

PMID: 30826271

DOI: 10.1016/j.jamda.2019.01.123


Related references

Advancing Long-Term Care Science Through Using Common Data Elements: Candidate Measures for Care Outcomes of Personhood, Well-Being, and Quality of Life. Gerontology and Geriatric Medicine 5: 2333721419842672, 2019

Psychometric Evaluation of the Team Member Perspectives of Person-Centered Care (TM-PCC) Survey for Long-Term Care Homes. Healthcare 6(2):, 2018

Resident outcomes of person-centered care in long-term care: a narrative review of interventional research. International Journal of Nursing Studies 51(10): 1395-1415, 2015

Care provider perspectives on end-of-life care in long-term-care homes: implications for whole-person and palliative care. Journal of Palliative Care 26(2): 122-129, 2010

A person-centered workplace: the foundation for person-centered caregiving in long-term care. Journal of the American Medical Directors Association 8(1): 46-54, 2007

The Influence of Supportive Supervisory Practices and Health Care Aides' Self-Determination on the Provision of Person-Centered Care in Long-Term Care Facilities. Journal of Applied Gerontology 38(11): 1564-1582, 2019

Alzheimer's Association towards Guidelines for Dementia Care Practice: Recommendations with emphasis on high-quality, person-centered care in long-term and community-based care settings. Alzheimer's & Dementia 14(4): 520-521, 2018

Initiating person-centered care practices in long-term care facilities. Journal of Gerontological Nursing 33(11): 47-56, 2007

Person-centered care and organizational culture in long-term care. Journal of Nursing Care Quality 24(4): 273-276, 2009

Person-centered care and quality of life of patients with dementia in long-term care facilities. Psychiatry Research 205(1-2): 103-108, 2013

Enhancing Person-Centered Care in Long-Term Care. Clinical Gerontologist 40(5): 321-323, 2017

Validity and Reliability of the Person-centered Care Assessment Tool in Long-term Care Facilities in Korea. Journal of Korean Academy of Nursing 45(3): 412-419, 2015

Person-centered care training in long-term care settings: usefulness and facility of transfer into practice. Canadian Journal on Aging 32(1): 57-72, 2013

Person-Centered Care Practices in Long-Term Care in the Deep South: Consideration of Structural, Market, and Administrator Characteristics. Journal of Applied Gerontology 37(3): 349-370, 2018

Taking a Person-Centered Approach to Understanding Sexual Expression among Long-term Care Residents: Theoretical Perspectives and Research Challenges. Ageing International 36(3): 401-417, 2011